Challenges and Blessings
The first big Midwest snowstorm of the season has come upon us this afternoon in big, fat, wet flakes. It’s the kind of day that makes you really, really glad that you have your Christmas shopping done and can take in a lazy afternoon of comfort food and nostalgic movies. We, unfortunately do not have […]
An Early Thanksgiving
We dared not believe it, but a moment of thanksgiving came a week early! I remember the prayer that Jocelyn and I offered up only 24 hours ago as we prepared for bed. We dared to pray for a weight gain of six ounces at today’s appointment with Dr. Weinhouse. After the modest weight gain […]
Celebrating Six!
Hey all – you’ve not heard from me because there hasn’t been much to report. We feed, we love, we push through the hard nights when she’s fussy and revel in the luxury of a few hours of sleep when she’s sleeping. But it’s my pleasure to announce that as the feedings continue, our girl […]
Julia’s Heart: The Straight Scoop
A short video explaining it all…
Happy Halloween & Back from PICU
The Halloween candy has been passed out and the porch light is off. It was the perfect kind of year for trick-or-treaters – just enough to take most of the candy and leave a little behind. Julia is resting comfortably on Jocelyn and we’ve decided that she likes sleeping on her belly the best (ed. […]
Detours Happen
It was going to be a routine (routine? really?) consult with Dr. Weinhouse today. A quick visit to confirm what thought we already knew: that she was growing, the diuretics were working and we were staying the course. Forget that we had sneaking suspicions that her breathing was faster and more labored. Jocelyn and I […]
Visits – Docs and Family
A lot has happened over the last week, the most exciting of which is that we really feel like we got our team to do Julia’s surgery. We met last Thursday with Dr. Henry Walters, the Chief of Pediatric Cardiac Surgery at Children’s Hospital of Michigan. We felt utterly taken aback by his humility and […]
Thus Far…
The weather has given way to wind and rain tonight, and I’m listening to Jocelyn singing “You Are My Sunshine” to Julia up in the nursery. The house is quiet after the flurry of activity that comes with trash night and a run to Target and I’m thinking back to where I was a month […]
Whatta Week…
I’m sitting next to my wife with the baby in her arms after a pretty tiring day. After a week’s blur of doctor’s appointments, trips to the pharmacy and paging through volumes of insurance forms, we are really feeling the fatigue. Julia has had a lively day where she stayed awake almost the whole morning […]
Little Bag O’ Sugar
A variant on the old Sesame Street tune: One of these things is just like the other! We have had some real encouragement over the last 24 hours. The visit with the hematologist yesterday went very well. Dr. Jamil has been watching Julia’s platelet condition over the past couple of weeks (you can read the […]