A Year (and a Lifetime) Ago
Tonight I was reminded again that sometimes in the crush of the day to day, I need to remember to sit and be grateful every now and again. It started innocently enough. I was dealing with a typical “first world” problem and rearranging some stuff in our refrigerator so that I could somehow wedge more […]
Meeting Abigail
One of the real highlights of our vacation was a long anticipated meeting. Not long into our adventure with Julia (and my writing about it), we were contacted by a longtime friend of Jocelyn. He had a friend, Kate, whose daughter was diagnosed in utero with Down Syndrome and the same heart condition as Julia. […]
Home Again!
Hey everyone – A very short post to tell you that Julia was discharged from Children’s Hospital today. We are home and I fulfilled a little dream of taking a dozing on the couch with my little girl crashed contentedly on my chest. Needless to say, we are exhausted; but thank you for following us […]
The State of Julia
Ladies and Gentlemen, prayer warriors, well wishers, friends and family: The State of Julia is strong. We’re in the home stretch here at Children’s Hospital of Michigan. Today during morning rounds, I heard two of the most beautiful words: “Discharge Studies”. Basically, they’re taking one more look under the hood to make sure all is […]
One Week’s Progress
This may very well be the shortest (in word length) entry I ever do: Monday, January 17 – 5:56pm: Monday, January 24 – 5:10pm: Guess that says it all, huh? By the way, that was the first time I saw my little girl’s smile in over a week. Melted her Dad’s heart.
Monday Monday…
A week ago today, we were waiting for news from the Operating Room and madly texting out whatever morsel of information we could get. Things are quite different now! The weekend was a mix of forward progress for Julia and utter emotional exhaustion for Jocelyn and I. It’s great to see how one tube after […]
Julia Unplugged – Well, Almost!
Julia had another good day, although most of it was spent sleeping off the sedatives after the removal of her arterial line, her foley (back to the diapers!) and three drainage tubes removed. Gang, all I can say is that the prayer is working! She has one drainage tube left and its flow, though a […]
A Big Day and A Special Message
I’m sitting in Julia’s room after a good day, but she’s finally crying from the pain of the chest tubes. It’s hard to watch, but we have dose of morphine on board to keep her comfortable and the team is planning to remove one or more lines tomorrow. We’re crossing our fingers, but Jocelyn may […]
More Wins and New Concerns
Hey everyone – Julia had a very restful night and continued to exceed the team’s expectations in terms of her feeding. I got in at around 6:45am and she was still sleeping peacefully, but soon awoke and was ready for a little more. She took two ounces with no problem and dropped back off to […]
Big Strides
Hey everyone – just a quick note of celebration tonight! We hit a big milestone in Julia’s recovery, and no one would have convinced me last night the kind of progress we have seen today. Notice anything different? If you don’t, I’m happy to report that as of 12:45 this afternoon, Julia is off the […]