Rounding Up
The feedings and medicine dosages continue, and the results are showing! Despite a few feeding challenges that we remediated with a dosage change in the reflux medicine, Julia hit seven pounds this week! Okay – full disclosure: her actual weight at the cardiologist visit was 6 pounds 15.8 ounces, but she was so close to […]
Thankful
The heavy rains of the day have subsided and I’m curled up by the fireplace in a rented house up on Cass Lake for the holiday. Epic sessions of Yatzee and Mexican Dominoes are in progress among the generations. Jocelyn’s entire family has gathered here from as far away as Texas to be together for […]
A New Milestone
We celebrated Julia’s two month birthday (minus a day) with a visit to her pediatrician on Friday. She got a clean bill of health (AVSD notwithstanding) and began her immunizations. One was the same Diptheria-Tetanus-Pertussus vaccine that every other kid in America gets (please, no comments on the merits or risks of immunization – that […]
An Early Thanksgiving
We dared not believe it, but a moment of thanksgiving came a week early! I remember the prayer that Jocelyn and I offered up only 24 hours ago as we prepared for bed. We dared to pray for a weight gain of six ounces at today’s appointment with Dr. Weinhouse. After the modest weight gain […]
Celebrating Six!
Hey all – you’ve not heard from me because there hasn’t been much to report. We feed, we love, we push through the hard nights when she’s fussy and revel in the luxury of a few hours of sleep when she’s sleeping. But it’s my pleasure to announce that as the feedings continue, our girl […]
Julia’s Heart: The Straight Scoop
A short video explaining it all…
Happy Halloween & Back from PICU
The Halloween candy has been passed out and the porch light is off. It was the perfect kind of year for trick-or-treaters – just enough to take most of the candy and leave a little behind. Julia is resting comfortably on Jocelyn and we’ve decided that she likes sleeping on her belly the best (ed. […]
Detours Happen
It was going to be a routine (routine? really?) consult with Dr. Weinhouse today. A quick visit to confirm what thought we already knew: that she was growing, the diuretics were working and we were staying the course. Forget that we had sneaking suspicions that her breathing was faster and more labored. Jocelyn and I […]
Visits – Docs and Family
A lot has happened over the last week, the most exciting of which is that we really feel like we got our team to do Julia’s surgery. We met last Thursday with Dr. Henry Walters, the Chief of Pediatric Cardiac Surgery at Children’s Hospital of Michigan. We felt utterly taken aback by his humility and […]
Thus Far…
The weather has given way to wind and rain tonight, and I’m listening to Jocelyn singing “You Are My Sunshine” to Julia up in the nursery. The house is quiet after the flurry of activity that comes with trash night and a run to Target and I’m thinking back to where I was a month […]