Ready to Rock…
It was a busy day for Julia at Children’s Hospital of Michigan as she went through all of the Pre-operation screening. Bottom line, she’s been cleared for the surgery scheduled for Monday. Let the prayers shift into overdrive… NOW! That’s the happy ending. The day didn’t start out with the sweetness and light we would […]
The Gift of Prayer
Our family got a beautiful gift from some friends today. Apparently, the plan was hatched a few days prior when some of the staff of my church decided to set some time aside to pray for Julia and her surgery (and for her parents to come down off the ceiling). The debate still rages on […]
A Heart Doctor’s (and a Dad’s) Prayer
Let me just admit at the outset that this post isn’t going to turn out like anything I had planned. Most of you who have been following this story know Dr. Weinhouse and what a caring, marvelous man he is. (ed. note: for those of you who haven’t had the pleasure, you can get caught […]
Eight is Great! Celebrate!
Hey everyone – just a short note of celebration! We took Julia into Dr. Weinhouse for her last consult before surgery and she is continuing to do great. She gained another seven ounces, which far exceeded our wildest hopes and put her well past the eight pound milestone. Like I said a week or two […]
Preparations
Yesterday, we met with Dr. Weinhouse, Julia’s cardiologist for a longer-than-normal consult. She continues to do very well and gained another four ounces. But we are shifting from maintenance mode to preparation for the surgery, which is less than three weeks away now. We did another echocardiogram and EKG so that the surgical team at […]
Dare to Ask
If you’ve been following our story over the past couple of weeks, you’ll know that we’ve been dealing with kind of a roller-coaster regarding her weight gain. It had come to the point last week that were resigning ourselves to the idea that her heart condition was making her progressively more tired and unable to […]
Finding Her Smile
Julia has made some great strides and had an adventure or two this week. It seems like she has learned to do so much in the last couple of weeks that we need to take a moment and celebrate. One of the big ones is that she has found her smile and is using it […]
Challenges and Blessings
The first big Midwest snowstorm of the season has come upon us this afternoon in big, fat, wet flakes. It’s the kind of day that makes you really, really glad that you have your Christmas shopping done and can take in a lazy afternoon of comfort food and nostalgic movies. We, unfortunately do not have […]
Rounding Up
The feedings and medicine dosages continue, and the results are showing! Despite a few feeding challenges that we remediated with a dosage change in the reflux medicine, Julia hit seven pounds this week! Okay – full disclosure: her actual weight at the cardiologist visit was 6 pounds 15.8 ounces, but she was so close to […]
A New Milestone
We celebrated Julia’s two month birthday (minus a day) with a visit to her pediatrician on Friday. She got a clean bill of health (AVSD notwithstanding) and began her immunizations. One was the same Diptheria-Tetanus-Pertussus vaccine that every other kid in America gets (please, no comments on the merits or risks of immunization – that […]