Julia Unplugged – Well, Almost!
Julia had another good day, although most of it was spent sleeping off the sedatives after the removal of her arterial line, her foley (back to the diapers!) and three drainage tubes removed. Gang, all I can say is that the prayer is working! She has one drainage tube left and its flow, though a […]
A Big Day and A Special Message
I’m sitting in Julia’s room after a good day, but she’s finally crying from the pain of the chest tubes. It’s hard to watch, but we have dose of morphine on board to keep her comfortable and the team is planning to remove one or more lines tomorrow. We’re crossing our fingers, but Jocelyn may […]
More Wins and New Concerns
Hey everyone – Julia had a very restful night and continued to exceed the team’s expectations in terms of her feeding. I got in at around 6:45am and she was still sleeping peacefully, but soon awoke and was ready for a little more. She took two ounces with no problem and dropped back off to […]
Big Strides
Hey everyone – just a quick note of celebration tonight! We hit a big milestone in Julia’s recovery, and no one would have convinced me last night the kind of progress we have seen today. Notice anything different? If you don’t, I’m happy to report that as of 12:45 this afternoon, Julia is off the […]
Overnight Progress & Today’s Plan
There’s a rhythm that has emerged in the goings on here on the PICU. Typically they try new things during the day – vent settings, new meds and the like – and then spend the night letting Julia rest and regroup, making only small adjustments in a “steady as she goes” attitude. So the rhythm […]
Marathon
Hey everyone! Sorry for the radio silence. Jocelyn, Julia and I got the rest we needed last night and the day is progressing well. But before I get into the details of today, let’s get a little recap of yesterday. (ed. note – For the uninitiated, some of the pics at the end of this […]
We Have A Dream
I suppose I’ll never understand on this side of eternity why one is given a certain burden and another gets something totally different. Fortunately, there are plenty of blessings and encouragements mixed in – if you’re watchful – to take some of the edge off. Nonetheless, no one would have convinced me or Jocelyn five […]
Ready to Rock…
It was a busy day for Julia at Children’s Hospital of Michigan as she went through all of the Pre-operation screening. Bottom line, she’s been cleared for the surgery scheduled for Monday. Let the prayers shift into overdrive… NOW! That’s the happy ending. The day didn’t start out with the sweetness and light we would […]
The Gift of Prayer
Our family got a beautiful gift from some friends today. Apparently, the plan was hatched a few days prior when some of the staff of my church decided to set some time aside to pray for Julia and her surgery (and for her parents to come down off the ceiling). The debate still rages on […]
A Heart Doctor’s (and a Dad’s) Prayer
Let me just admit at the outset that this post isn’t going to turn out like anything I had planned. Most of you who have been following this story know Dr. Weinhouse and what a caring, marvelous man he is. (ed. note: for those of you who haven’t had the pleasure, you can get caught […]