Bring It + 365
It was a warm Sunday afternoon a year ago that I settled into the comfortable chair in my daughter’s as yet unoccupied nursery to begin the adventure in words and pictures that you see before you. After recounting the challenges we had seen in the months before and those in the future that seemed to […]
Meeting Abigail
One of the real highlights of our vacation was a long anticipated meeting. Not long into our adventure with Julia (and my writing about it), we were contacted by a longtime friend of Jocelyn. He had a friend, Kate, whose daughter was diagnosed in utero with Down Syndrome and the same heart condition as Julia. […]
God is So Faithful…
I’ve taken some time off recently to settle back into life after all of the drama that’s happened in the past… six months or year, depending on where you set the story’s beginning. I gotta tell you, being the dad of a (now) reasonably typical kid like Julia is great. And having come through the […]
Marathon
Hey everyone! Sorry for the radio silence. Jocelyn, Julia and I got the rest we needed last night and the day is progressing well. But before I get into the details of today, let’s get a little recap of yesterday. (ed. note – For the uninitiated, some of the pics at the end of this […]
We Have A Dream
I suppose I’ll never understand on this side of eternity why one is given a certain burden and another gets something totally different. Fortunately, there are plenty of blessings and encouragements mixed in – if you’re watchful – to take some of the edge off. Nonetheless, no one would have convinced me or Jocelyn five […]
A Heart Doctor’s (and a Dad’s) Prayer
Let me just admit at the outset that this post isn’t going to turn out like anything I had planned. Most of you who have been following this story know Dr. Weinhouse and what a caring, marvelous man he is. (ed. note: for those of you who haven’t had the pleasure, you can get caught […]
Preparations
Yesterday, we met with Dr. Weinhouse, Julia’s cardiologist for a longer-than-normal consult. She continues to do very well and gained another four ounces. But we are shifting from maintenance mode to preparation for the surgery, which is less than three weeks away now. We did another echocardiogram and EKG so that the surgical team at […]
Christmas Greetings from the Farm
It’s Christmas Eve at the farm on Willow Road, and the house is at rest after a busy day of visits, celebration meals, and a lot of calls on Skype to our loved ones as far flung as the U.K. We also had the annual stream of neighbors – some of whom you’ve been introduced […]
Dare to Ask
If you’ve been following our story over the past couple of weeks, you’ll know that we’ve been dealing with kind of a roller-coaster regarding her weight gain. It had come to the point last week that were resigning ourselves to the idea that her heart condition was making her progressively more tired and unable to […]
Thankful
The heavy rains of the day have subsided and I’m curled up by the fireplace in a rented house up on Cass Lake for the holiday. Epic sessions of Yatzee and Mexican Dominoes are in progress among the generations. Jocelyn’s entire family has gathered here from as far away as Texas to be together for […]