The State of Julia

Ladies and Gentlemen, prayer warriors, well wishers, friends and family: The State of Julia is strong. We’re in the home stretch here at Children’s Hospital of Michigan. Today during morning rounds, I heard two of the most beautiful words: “Discharge Studies”. Basically, they’re taking one more look under the hood to make sure all is […]

One Week’s Progress

This may very well be the shortest (in word length) entry I ever do: Monday, January 17 – 5:56pm: Monday, January 24 – 5:10pm: Guess that says it all, huh? By the way, that was the first time I saw my little girl’s smile in over a week. Melted her Dad’s heart.

More Wins and New Concerns

Hey everyone – Julia had a very restful night and continued to exceed the team’s expectations in terms of her feeding. I got in at around 6:45am and she was still sleeping peacefully, but soon awoke and was ready for a little more. She took two ounces with no problem and dropped back off to […]

Big Strides

Hey everyone – just a quick note of celebration tonight! We hit a big milestone in Julia’s recovery, and no one would have convinced me last night the kind of progress we have seen today. Notice anything different? If you don’t, I’m happy to report that as of 12:45 this afternoon, Julia is off the […]

Eight is Great! Celebrate!

Hey everyone – just a short note of celebration! We took Julia into Dr. Weinhouse for her last consult before surgery and she is continuing to do great. She gained another seven ounces, which far exceeded our wildest hopes and put her well past the eight pound milestone. Like I said a week or two […]

Christmas Greetings from the Farm

It’s Christmas Eve at the farm on Willow Road, and the house is at rest after a busy day of visits, celebration meals, and a lot of calls on Skype to our loved ones as far flung as the U.K. We also had the annual stream of neighbors – some of whom you’ve been introduced […]

Dare to Ask

If you’ve been following our story over the past couple of weeks, you’ll know that we’ve been dealing with kind of a roller-coaster regarding her weight gain. It had come to the point last week that were resigning ourselves to the idea that her heart condition was making her progressively more tired and unable to […]

Little Bag O’ Sugar

A variant on the old Sesame Street tune: One of these things is just like the other! We have had some real encouragement over the last 24 hours. The visit with the hematologist yesterday went very well. Dr. Jamil has been watching Julia’s platelet condition over the past couple of weeks (you can read the […]